On Sep 30, 2007, at 9:11 PM, Micci_Rog wrote:
> She was our first DAN! The only reason I would ever recommend her is
> if someone has to have a DAN doctor that takes insurance. She even is
> an AllKids provider. Other than that, the way she speaks and dealt
> with us was in very tactless and insulting. I ended up crying all the
> way home after a couple of the appointments. She would say things to
> me like, "your daughter is 10, it is probably too late to recover her
> and you have likely done irreparable damage to her neurological system
> by not having her on the gfcf diet", and "you really should have read
> and studied up before deciding to have children". I also got
> contradictory information. She did the unreliable fecal and urine
> metals tests, told me that my daughter looked like she might have some
> mercury stores that are hidden. Then when we consulted with ARCH
> clinic and wanted to do IV chelation she told me that my daughter
> probably didn't have mercury. (later I found out that she is so metal
> toxic, she is the most metal toxic kid ARCH clinic has ever had) She
> refused to run any DAN protocol pre-chelation tests because another
> DAN doctor wanted them. She said they were all unnecessary and I was
> going to drive my daughter crazy getting blood drawn (huh? she drew my
> daughter's blood before witwhout concern). These were liver panel
> testing that was needed to start chelation. She also was not that
> great with putting my daughter on a comprehensive supplement program,
> and did not follow up well on the next visit. The reason we got a DAN
> is I wanted help coming up with what to give, when and how much.
> Instead she would tell me to read and study when I woud ask for help,
> or shame me by saying, "all my patients are more studied and
> knowledgable than most doctors". Why bother paying a doctor just to
> be told to do it myself?
>
> I actually spoke to a mom today on the phone who seems to be doing OK
> working with her, so maybe other patients do not have the same
> experience that we did. I will acknowledge that it may have been a
> personality issue between us. We go to ARCH clinic now and I
> absolutely love them, so if I ever give out a recommendation it will
> be to go to them. They are positive and treat us like family every
> time we walk through the door. They never give up on a child or shame
> the parents.
>
> Hope that helps.
>
> Michelle
>
> --- In IllinoisBiomedicalKids@yahoogroups.com, "Alexandra Solomon"
>
> >
> > Hi--
> > I got a call tonight from a mom who is considering consulting with
> Northbrook DAN! doc, Elena Koles. I have never heard of her, so I
> told this mom that I would post here and find out if anyone knew any
> thing, good or bad about her....
> > What do you think?
> > Alexandra
