Я нашла интересный пост

в английском форуме. Там английский вроде как не сложный.
Его написал аутист. Я тут целое утро думаю:)))(что уже похвально) над последним сообщением в форуме Лены из Канады о Данькиных тестах и о количестве капсул и таблеток, которые надо давать. Я с трудом впихиваю масла ложку и немного витаминов в сок.
Прочитала и почуствовала себя плохой и эгоистичной, потому что мне покой и хорошее настроение важнее впихивания таблеток. А тут еще этот пост... Может все витамины-диеты-кандиты - это ерунда? мОЖЕТ НЕ НАДО "ЛЕЧИТЬ" аутистов? Вечный вопрос... И Фенечка на танцах...
Purely personal here:

I am autistic. I refer to myself as autistic or as an autistic. Sometimes I refer to myself as 'autist', but usually only in connection the'artist', as in 'the autist artist'.
I also refer to myself as 'spectrum person'.
Autism is me.. I am autism. There is no way to seperate me from it or it from me, because there is no boundary. Autism is pervasive. It colours everything I experience, everything I remember, everything I sense, everything I think, everything I am, everything I will be. There is no 'normal' me stuck inside an autistic 'shell'. My autism goes all the way to my core.
If someone were to find a way to cure autism, I would never take it. To remove my autism is to destroy me completely, totally eradicate the person that I am. I have no idea whether anything would be left at all, and if there was, what kind of person it would leave. I suspect it would be very, very bad. If my autism was removed, I would not be me. I would not even be anything like me. For all intents and purposes, I would be dead. The person that I am would cease to be. To me, that is akin to death.
I feel bad for autistic kids whose parents are deeply involved in organizations that are pushing to cure/eradicate autism... we're not stupid or insensate, even as little kids. What kind of message is the parents' involvement in organizations like CAN/DAN sending to the autistic kid? How about 'we don't want you as you are', 'we want to remake you into someone else', 'we wish you were someone else, a 'normal' kid', 'we wish you didn't exist', 'we would destroy you to make you 'normal', 'we don't accept you', 'we'd love you more if you were 'normal'. That is what it often feels like to us, as children, seeing the world with our kid-logic. Personally, I really think society needs to stop pursuing 'normal' as some sort of holy grail. Normal isn't all it is cracked up to be. Autism is beautiful. Autistics are often great thinkers and inventors. We push society ahead. We are needed in society if society is to keep progressing and avoid stagnation.
I spend a lot of my cognitive energy on autism and the stuff that goes along with it. I spend most of it there, actually. If parents of autistic kids think about it 10 times a day, I'd be lucky if I have 10 minutes during the day when I am not thinking about it, especially on workdays. The way my senses work means that I am always hyperaware of my surroundings, and unless I am in my own home with the lights low, I am constantly being bombarded with sensory stimuli that are uncomfortable and upsetting. Add to it the amount of effort I have to sink into deciphering the unspoken social messages of the NTs I work with, and having to figure out which response is needed to what social cue (something I cannot do instinctively and must do cognitively), and that means I am spending 90% or more of my mental energy on surviving in an NT world, and autism-related coping mechanisms. No small wonder I often seem preoccupied.
As to the phrases that are often used to describe us, like 'lost', 'locked inside autism', 'prisoners of autism', 'afflicted with autism', 'suffering with autism', 'burdened by autism', 'off in his/her own world', 'vanished', 'taken by autism', 'stolen by autism', 'kidnapped by autism', etc.. hell yes, I find them offensive! I think most autistic adults and kids do. We're not lost, stolen, vanished, kidnapped, taken, imprisoned, suffering, afflicted, burdened, or locked away. If anything, we're far too aware of the world. The world is too much with us, and we retreat from the constant sensory onslaught to protect ourselves from bombardment. Our autism isn't the burden... unrealistic expectations and lack of public tolerance and understanding are. We don't suffer from autism, we suffer from a lack of tolerance, acceptance, and understanding from others. We sometimes can suffer from certain issues related to Sensory Integration Disorder, but that is not autism, and there are ways to mediate it. Those loaded, negative, intolerant phrases need to be left beind with other phrases that described difference and disability that society has outgrown.. phrases like retard, cripple, invalid, moron, idiot, spaztic, mongoloid, feeble minded, defective, deformed, dumb, crazy, and inferior.
S.

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